Cystic Fibrosis
Living with CF in the Channel Islands presents a wide range of additional challenges not faced by those living with the condition in the UK.
Having watched my daughter struggle through her teenage years at school, battling ill health, depression and more recently the daunting task of finding employment, with a little known and understood ‘hidden’ disability, I decided that action was required, not only to help Courtney but the youngsters who would be treading in Courtney’s footsteps. CF, particularly in the Channel Islands, can be a very isolating condition when it doesn’t need to be.
With the assistance of another Dad (who’s teenage daughter also suffers from CF) we set up Cystic Fibrosis Guernsey, becoming a registered member of the Guernsey Disability Alliance and more recently the first locally registered CF charity.